Several members of the ICPHR have been cooperating on a number of book projects and special journal editions. An overview was prepared for the Annual Working Meeting in Edmonton and is available here.
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A new version of the ICPHR Position Paper #1 has been recently published in Portuguese titled "O QUE É A PESQUISA-AÇÃO PARTICIPATIVA EM SAÚDE". This new position paper is available for download under our Resources page.
Dear ICPHR members and friends,
I have been thinking about ways we can capitalise on work each of us is already doing in building a strong evidence base in all areas of PHR. One area that often goes underappreciated is the richness of work our graduate students do in preparing literature reviews for their masters and doctoral theses. These reviews often go unpublished, despite being valuable syntheses of the knowledge in each specialised corner of the PHR world where the student’s research is focussed. We would like, therefore, to give you and your students the opportunity to publish thesis lit review chapters on the ICPHR website. This would archive and make them publicly available, while building a categorised database of valuable knowledge. THE REVIEWS CAN BE IN ANY LANGUAGE! We are looking for lit reviews/syntheses that specifically pertain to the participatory process. I.e., not the general review on the thesis topic such as “the state of the literature in home care nursing,” but yes to “the use of participatory engagement methods in improving home care nursing.” So this might be a portion of the overall review. Once published on the ICPHR website, you and your students would retain copyright and would be free to submit your reviews to journals for publication. Many major journals (such as Milbank Quarterly, for example) allow you to leave the original pre-submission version of your work on the website, as long as you direct the readers to the final published version as well. Otherwise you are always free to remove the review from the ICPHR site and later replace it with the final published version. If you are interested in pursuing this, please feel free to contact me ([email protected]) or simply send on your lit review section for posting. Many thanks! Jon Salsberg The 2017 AWM Meeting Minutes are now posted. Please visit the AWM 2017 page to view the summary of our meeting in Limerick.
We have also update the ICPHR Project Groups page with new projects that are underway by members of the ICPHR. Please visit the Project Page group, if you are interested in supporting any of the projects please contact the project lead (email is posted). A new Organizational Participatory Research Practice Guide co-produced by ICPHR member Paula L. Bush from Participatory Research at McGill (PRAM) is now available for download. A new edition of Community-Based Participatory Research for Health is now out! This book is edited by ICPHR members Nina Wallerstein, John Oetzel and colleagues and includes contributions from other ICPHR members. The book is a widely-read textbook on CBPR. The new edition includes several new chapters. For more information, click here. Special offer: 20% off when you use the code WAL20 at wiley.com until December 31st, 2017 Dear ICPHR-Participants
Mario Bach from the Robert Koch Institute (a national public health institute in Germany) would like to invite you to take part in a working group to be held on the 2017 ICPHR working meeting in Limerick. The group will focus on participatory research practices in health reporting and epidemiology. Background Epidemiology and health reporting are contributing in many ways to identifying various risk factors for disease and to promoting population health. However, there is a continuing debate about the ability of epidemiology not only to describe, but also to provide results which can be better translated into public health practice. It has been proposed that applying participatory research approaches to epidemiology as a way to bridge this gap between description and action. Within the context of PartKommPlus-Research Consortium for Healthy Communities the conceptual framework Participatory Epidemiology was developed to address this gap (see link below). Aim of the working group An introduction into the concept will be provided and selected examples of participatory epidemiological practice will be presented. In the working group methodological and practical issues like defining the population, reconsidering context, or synthesizing heterogeneous data can be discussed concerning your own experiences. The working group aims to share ideas and experiences in participatory data acquisition and usage for health reporting and epidemiology. The group will be chaired by Mario Bach. Kind regards Mario Bach, Susanne Jordan, Claudia Santos-Hövener The conceptual framework is available at: http://ete-online.biomedcentral.com/articles/10.1186/s12982-017-0056-4 If you have any questions please contact: [email protected]  Please visit the Kids In Action Project Summaries page to read about current Kids In Action projects from across the globe! If you would like to join this group, learn how you can register here.
 Newsletter of the International Collaboration for Participatory Health Research (ICPHR)
Third Quarter, 2016 Information en français: Nita Chaudhuri, [email protected] Informatión en español: Francisco Javier Mercado Martinez, [email protected] Informação em Português: Irma Brito, [email protected] Information auf Deutsch: Michael Wright, [email protected] In this Issue:
1 Annual Working Meeting 2016 a Success The Seventh Annual Working Meeting was held in Malmö (Sweden) from August 25th to August 27th. A pre-conference took place in Göteborg on August 24th where work being conducted in Sweden was presented and international speakers addressed current issues in participatory health research. The minutes of the Annual Working Meeting will be posted soon on the website. Also, the list of projects will be updated. A special thanks to the ICPHR members Margareta Rämgård from Malmö University and Maria Magnusson from the University of Gothenburg and Angered Hospital for organizing and hosting the both meetings! 2 ICPHR Kids in Action Initiative Children are an often overlooked group when it comes to participatory research projects. We have an exciting new opportunity for those who are interested in conducting Participatory Health Research (PHR) with children – the Kids in Action multi-country 3 year collaborative initiative. The initiative, officially launched at the Annual Working Meeting in Malmö, is being coordinated by Prof. Lisa Gibbs, Director of the Jack Brockhoff Child Health and Wellbeing Program and Unit Head of the Evidence and Child Health Unit in the Centre for Health Equity, Melbourne School of Population and Global Health at the University of Melbourne (Australia). You can find out more about Kids in Action by going to the new page on our website where there is also information about registering. 3 *New* Publication Documenting the History of the ICPHR ICPHR member Dr. Wendy Madsen from the School of Human, Health and Social Services at the Central Queensland University (Australia), has published the article “‘There and back again’: International Collaboration for Participatory Health Researchers’ journeys to evidence based practice and practice based evidence,” documenting the historical development of the ICPHR. The article can be found in the International Journal of Action Research, Volume 12, Issue 3 (2016), pp. 294-314. 4 Save the Date! Annual Working Meeting 2017 in Ireland The Annual Working Meeting 2017 will not take place in Galway (Ireland) as previously announced, but rather in Limerick, from 25-27 May 2017. A pre-conference will take place earlier that week in Galway to which all ICPHR will be invited. We will keep you posted through the newsletter and on our website as the details become available. 5 Add us to Your Website Adding a link to the ICPHR website is an important way you can contribute to spreading the word about our work! 6 Getting Involved The best way to get involved in the work of the ICPHR is through the Project Groups and Focus Areas. Contact the coordinators of the projects which meet your interests. Members are also welcome to set up new projects. This can be done by submitting an idea to the Central Office. Or maybe you represent an organization and are looking to cooperate with the ICPHR. Just send an email to the Central Office with a description of your work and we will contact you. Our list of current projects can be found here. The Focus Areas are described here.  We are delighted to announce that registration for the Kids in Action Initiative is now open!
If you are involved in conducting some form of health research, with children under 14 years involved as decision makers and co-researchers, we would love to have you in our Kids in Action international network. Just go to http://www.icphr.org/kids-in-action.html to submit your application for free registration. The Kids in Action network is being established to increase the profile of participatory research with children, to offer local projects increased credibility in their efforts to fund and resource their projects, to provide a platform for shared learning and development of these methods, and a means for generating resources to share with others to support the use of participatory health research with children. There may also be interest among the Kids in Action members to contribute child input into debate about global issues. If you would like further information please contact: Associate Professor Lisa Gibbs Director, Jack Brockhoff Child Health & Wellbeing Program University of Melbourne [email protected] We have an exciting new opportunity for those who are interested in conducting Participatory Health Research (PHR) with children - the 'Kids in Action' multi-country 3 year collaborative initiative. Kids in Action is a new focus area of the ICPHR that will be launched at our 2016 Annual Working Meeting in Sweden. For more information, please visit our project page.
The meeting minutes from the 2015 Annual Working Meeting in Berlin Germany are now posted. The minutes highlight new projects that the ICPHR is undertaking as well as emergent issues.
We are excited to announce 4 new projects the ICPHR is undertaking:
Newsletter of the International Collaboration for Participatory Health Research (ICPHR)
First Quarter, 2016 Information en français: Nita Chaudhuri, [email protected] Informatión en español: Francisco Javier Mercado Martinez, [email protected] Informação em Português: Irma Brito, [email protected] Information auf Deutsch: Michael Wright, [email protected] In this Issue:
1 Last Call! Annual Working Meeting 2016 As previously announced, the next Annual Working Meeting of the ICPHR will take place in Malmö, Sweden from 9am, Thursday, 25 August to 2pm, Saturday, 27 August 2016. Registration ends on May 2nd! The meeting is a place where we can work on joint projects and learn more about what we are doing in our home countries. All registrants will receive a detailed program and a list of recommended hotels, both of which are also posted on the website. A pre-conference will be taking place in Göteborg on 24 August where work being conducted in Sweden will be presented and international speakers will address current issues in participatory health research. Please go to the site for more information. 2 ICPHR Kids in Action Initiative Children are an often overlooked group when it comes to participatory research projects. We have an exciting new opportunity for those who are interested in conducting Participatory Health Research (PHR) research with children – the Kids in Action multi-country 3 year collaborative initiative. The initiative, which will be launched at the Annual Working Meeting in Malmö, is being coordinated by Prof. Lisa Gibbs, Director of the Jack Brockhoff Child Health and Wellbeing Program and Unit Head of the Evidence and Child Health Unit in the Centre for Health Equity, Melbourne School of Population and Global Health at the University of Melbourne (Australia). Information will be coming soon on our website. 3 Ethics in Participatory Health Research: Request for Case Examples and Case Studies We continue to collect case examples for a broader discussion on ethics in Participatory Health Research. These examples will illustrate the issues raised in our position paper on ethics, available on the website. For more information about the case examples and case studies, click here. Feel free to submit your case studies in languages other than English. We will work with our language coordinators to find ways to incorporate these studies into the sites which are currently being developed in other languages. We look forward to hearing from you! 4 Add us to Your Website Adding a link to the ICPHR website is an important way you can contribute to spreading the word about our work! 5 Getting Involved The best way to get involved in the work of the ICPHR is through the Project Groups and Focus Areas. Contact the coordinators of the projects which meet your interests. Members are also welcome to set up new projects. This can be done by submitting an idea to the Central Office. Or maybe you represent an organization and are looking to cooperate with the ICPHR. Just send an email to the Central Office with a description of your work and we will contact you. Our list of current projects can be found here: http://www.icphr.org/projects.html The Focus Areas are described here. A summary of the 2014 Annual Working Meeting is now posted on the Niteroi conference page. We have also posted an updated project list to include new members projects identified at the AWM 2014. If you are interested in joining any of the projects, please email the member lead directly.
The Promise of Community-Based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence With Policy
Lisa Cacari-Stone, PhD, MA, MS, Nina Wallerstein, DrPH, Analilia P. Garcia, DrPH, MPH, and Meredith Minkler, DrPH Abstract: Insufficient attention has been paid to how research can be leveraged to promote health policy or how locality-based research strategies, in particular community-based participatory research (CBPR), influences health policy to eliminate racial and ethnic health inequities. To address this gap, we highlighted the efforts of 2 CBPR partnerships in California to explore how these initiatives made substantial contributions to policymaking for health equity. We presented a new conceptual model and 2 case studies to illustrate the connections among CBPR contexts and processes, policymaking processes and strategies, and outcomes. We extended the critical role of civic engagement by those communities that were most burdened by health inequities by focusing on their political participation as research brokers in bridging evidence and policymaking. (Am J Public Health. Published online ahead of print July 17, 2014: e1–e9. doi:10.2105/AJPH.2014.301961) Citation: Cacari-Stone, L., Wallerstein, N., Garcia, A. P., & Minkler, M. (2014). The Promise of Community-Based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence With Policy. American journal of public health, (0), e1-e9. Copyright holder: American Public Health Association (APHA) Read More: http://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2014.301961 A newly formed local network of PHR researchers has come together at Malmö University in Sweden. Researchers at Malmö University combine their academic research with extensive cooperation with various stakeholders and employers in the community.
The group members in the local network are involved in different kind of work mostly in social innovation in social work, and social work with health issues in the communities. Platforms that are supported by this group include:
The local network would like to connect with other action researchers in Sweden! To learn more and get involved contact Margareta Rämgård at [email protected] As discussed at our last Annual Working Meeting in Newcastle in June we will be collecting case examples for a broader dicussion on ethics in Participatory Health Research. These examples will illustrate the issues raised in our position paper on ethics, available on the website. For more information about the case examples and case studies, click here.
Feel free to submit your case studies in languages other than English. We will work with our language coordinators to find ways to incorporate these studies into the sites which are currently being developed in other languages. We look forward to hearing from you! The NARCH research partnership co-led by ICPHR member Dr. Nina Wallerstein is a multi-site investigation into the facilitators and barriers of Community Based Participatory Research (CBPR) in underserved communities in order to improve health status and health equity.
The pilot project was initiated in 2006 and since has expanded to study 200 CBPR projects in the United States including 7 in-depth case studies. Please visit our members publications page to view publications on this project. ICPHR member Dr. Tina Cook from Northumbria University/UK and colleagues were recently awarded a grant by JISC to set up a knowledge base pilot project for participatory research projects in the health field. The project is a cooperation with Sheffield University, Kings College London and the University of Cambridge in the UK and the Catholic University of Applied Sciences in Berlin/Germany. There is currently no technological way of capturing and representing the impact of participatory research (PR). Focusing on participatory health research, this proposal brings together people with expertise in participatory, inclusive and action research, community engagement and impact analysis with technology designers to develop an open, online, interactive CERIF database.
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