Health Expectations is now inviting submission of papers for a special edition focussing on patient and public involvement and engagement in mental health research.

We anticipate that submitted manuscripts will include high quality systematic reviews, original research papers reporting aspects of PPIE and mental health research.

If your research meets the criteria presented in the poster below, please consider submitting your work to Health Expectations.

Deadline extended: July 31st, 2019 Contact the editorial office: [email protected]

Participatory research presents unique ethical challenges. Sarah Banks from the Executive Committee of the International Collaboration for Participatory Health Research and Mary Brydon-Miller have just published a collection of cases and commentaries shedding light on the many issues involved:
 
Ethics in participatory research for health and social well-being: Cases and commentaries, edited by Sarah Banks and Mary Brydon-Miller (Abingdon, Routledge).
 
This builds on the substantial body of work undertaken in recent years by the Centre for Social Justice and Community Action, Durham University, UK and ICPHR, providing a welcome resource for participatory researchers.  The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. 
 
Further details can be found on the book website. 20% discount is available if you order via this website, please enter the code  at checkout: FLR40.

Among the topics covered:

• Demonstrating impact in participatory health research
• Reviewing the effectiveness of participatory health research: challenges and possible solutions
• Kids in Action—participatory health research with children
• Participatory health research: an Indian perspective
• Participatory health research in Latin America: scientific production on chronic diseases
• Participatory health research in North America: from community engagement to evidence-informed practice           

Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.

Use the following token on Springer.com to save 20%: 7jjQ99ZP4G3C7kC

About the Editors
Michael T. Wright, PhD, LICSW, MS, is a professor for Research Methods at Catholic University of Applied Sciences in Berlin, Germany. Dr. Wright also is co-founder and coordinator of both the German Network for Participatory Health Research and the International Collaboration for Participatory Health Research. He has served as associate editor of the International Journal of Public Health.

Krystyna Kongats, MPH, is a PhD candidate in Health Promotion at the School of Public Health, University of Alberta in Edmonton, Canada. Her primary experience, skills, and interests lie in participatory and creative approaches to research, health promotion, and end of life care. She is also a consortium member of the International Collaboration for Participatory Health Research.

Several members of the ICPHR have been cooperating on a number of book projects and special journal editions.  An overview was prepared for the Annual Working Meeting in Edmonton and is available here.

A new version of the ICPHR Position Paper #1 has been recently published in Portuguese titled "O QUE É A PESQUISA-AÇÃO PARTICIPATIVA EM SAÚDE". This new position paper is available for download under our Resources page. 

Dear ICPHR members and friends,
 
I have been thinking about ways we can capitalise on work each of us is already doing in building a strong evidence base in all areas of PHR. One area that often goes underappreciated is the richness of work our graduate students do in preparing literature reviews for their masters and doctoral theses.
 
These reviews often go unpublished, despite being valuable syntheses of the knowledge in each specialised corner of the PHR world where the student’s research is focussed.
 
We would like, therefore, to give you and your students the opportunity to publish thesis lit review chapters on the ICPHR website. This would archive and make them publicly available, while building a categorised database of valuable knowledge.  THE REVIEWS CAN BE IN ANY LANGUAGE!
 
We are looking for lit reviews/syntheses that specifically pertain to the participatory process. I.e., not the general review on the thesis topic such as “the state of the literature in home care nursing,” but yes to “the use of participatory engagement methods in improving home care nursing.” So this might be a portion of the overall review.
 
Once published on the ICPHR website, you and your students would retain copyright and would be free to submit your reviews to journals for publication. Many major journals (such as Milbank Quarterly, for example) allow you to leave the original pre-submission version of your work on the website, as long as you direct the readers to the final published version as well. Otherwise you are always free to remove the review from the ICPHR site and later replace it with the final published version.
 
If you are interested in pursuing this, please feel free to contact me ([email protected]) or simply send on your lit review section for posting.
 
Many thanks!
 
Jon Salsberg

A new Organizational Participatory Research Practice Guide co-produced by ICPHR member Paula L. Bush from Participatory Research at McGill (PRAM) is now available for download. 

We are thrilled to announce the Special Themed Issue: The Conceptualisation and Articulation of Impact: Hopes, Expectations and Challenges for the Participatory Paradigm in Educational Action Research. Congratulations to ICPHR members Tina Cook and Brenda Roche who co-edited this special edition and to all ICPHR members who authored papers in this issue. 

With permission from Ronald Labonte, we have posted the 'Handbook on Using Stories in Health Promotion Practice' By Ronald Labonte and Joan Feather under our Resources-Members Publications page. 

If you have any resources you think would be helpful to Participatory Health Researcher, please get in touch via our 'Contact Us' page. 

Dear ICPHR-Participants
Mario Bach from the Robert Koch Institute (a national public health institute in Germany) would like to invite you to take part in a working group to be held on the 2017 ICPHR working meeting in Limerick. The group will focus on participatory research practices in health reporting and epidemiology.
 
Background
Epidemiology and health reporting are contributing in many ways to identifying various risk factors for disease and to promoting population health. However, there is a continuing debate about the ability of epidemiology not only to describe, but also to provide results which can be better translated into public health practice. It has been proposed that applying participatory research approaches to epidemiology as a way to bridge this gap between description and action. Within the context of PartKommPlus-Research Consortium for Healthy Communities the conceptual framework Participatory Epidemiology was developed to address this gap (see link below).
 
Aim of the working group
An introduction into the concept will be provided and selected examples of participatory epidemiological practice will be presented. In the working group methodological and practical issues like defining the population, reconsidering context, or synthesizing heterogeneous data can be discussed concerning your own experiences. The working group aims to share ideas and experiences in participatory data acquisition and usage for health reporting and epidemiology. The group will be chaired by Mario Bach.
 
Kind regards
Mario Bach, Susanne Jordan, Claudia Santos-Hövener
 
The conceptual framework is available at: http://ete-online.biomedcentral.com/articles/10.1186/s12982-017-0056-4
 
If you have any questions please contact: [email protected]
​

Newsletter of the International Collaboration for Participatory Health Research (ICPHR)
 
Third Quarter, 2016
 
Information en français: Nita Chaudhuri, [email protected]
Informatión en español: Francisco Javier Mercado Martinez, [email protected]
Informação em Português: Irma Brito, [email protected]
Information auf Deutsch: Michael Wright, [email protected]
 
In this Issue:

1. Annual Working Meeting 2016 a Success
2. ICPHR Kids in Action Initiative
3. New Publication Documenting the History of the ICPHR
4. Save the Date! Annual Working Meeting 2017 in Ireland
5. Add us to Your Website
6. Getting Involved

 
1 Annual Working Meeting 2016 a Success
 
The Seventh Annual Working Meeting was held in Malmö (Sweden) from August 25th to August 27th.  A pre-conference took place in Göteborg on August 24th where work being conducted in Sweden was presented and international speakers addressed current issues in participatory health research.  The minutes of the Annual Working Meeting will be posted soon on the website.  Also, the list of projects will be updated.  A special thanks to the ICPHR members Margareta Rämgård from Malmö University and Maria Magnusson from the University of Gothenburg and Angered Hospital for organizing and hosting the both meetings!
 
2 ICPHR Kids in Action Initiative
 
Children are an often overlooked group when it comes to participatory research projects.  We have an exciting new opportunity for those who are interested in conducting Participatory Health Research (PHR) with children – the Kids in Action multi-country 3 year collaborative initiative.  The initiative, officially launched at the Annual Working Meeting in Malmö, is being coordinated by Prof. Lisa Gibbs, Director of the Jack Brockhoff Child Health and Wellbeing Program and Unit Head of the Evidence and Child Health Unit in the Centre for Health Equity, Melbourne School of Population and Global Health at the University of Melbourne (Australia).  You can find out more about Kids in Action by going to the new page on our website where there is also information about registering. 
 
3 *New* Publication Documenting the History of the ICPHR
 
ICPHR member Dr. Wendy Madsen from the School of Human, Health and Social Services at the Central Queensland University (Australia), has published the article “‘There and back again’: International Collaboration for Participatory Health Researchers’ journeys to evidence based practice and practice based evidence,” documenting the historical development of the ICPHR.  The article can be found in the International Journal of Action Research, Volume 12, Issue 3 (2016), pp. 294-314. 
 4 Save the Date! Annual Working Meeting 2017 in Ireland
 
The Annual Working Meeting 2017 will not take place in Galway (Ireland) as previously announced, but rather in Limerick, from 25-27 May 2017.  A pre-conference will take place earlier that week in Galway to which all ICPHR will be invited.  We will keep you posted through the newsletter and on our website as the details become available.
 
5 Add us to Your Website
 
Adding a link to the ICPHR website is an important way you can contribute to spreading the word about our work!
 
6 Getting Involved

The best way to get involved in the work of the ICPHR is through the Project Groups and Focus Areas.  Contact the coordinators of the projects which meet your interests.  Members are also welcome to set up new projects.  This can be done by submitting an idea to the Central Office.  Or maybe you represent an organization and are looking to cooperate with the ICPHR.  Just send an email to the Central Office with a description of your work and we will contact you.  Our list of current projects can be found here. The Focus Areas are described here.

We have updated our ICPHR Resources section with a new Quality Criteria For Participatory Health Research paper in German. Visit our ICPHR Resources page to view this new update. 

Research for All: Call for papers
Research For All: Universities and Society is a new journal and we are very keen to welcome your contributions to it. The journal is for anyone, working inside or outside universities, who is committed to seeing research make a difference in society.
 
Engagement with research goes further than participation in it. Engaged individuals and communities initiate, advise, challenge or collaborate with researchers. Their involvement is always active and they have a crucial influence on the conduct of the research – on its design or methods, products, dissemination or use. Research For All focuses on research that involves universities and communities, services or industries working together.
 
Contributors and readers are from both inside and outside of higher education. They include researchers, policymakers, managers, practitioners, community-based organizations, schools, businesses and the intermediaries who bring these people together. The journal aims to raise the quality of engaged research by stimulating discussion about the effectiveness of engagement with researchers, research outcomes and processes.
 
We are currently looking for articles that describe, explain and analyse engaged research. Articles may include words, images, audio and video. Submissions should fall into the following broad categories. We are particularly keen to receive co-authored contributions. We are looking for a range of types of contribution including:

• Articles that investigate the relationship between theory and practice. These might be conventional academic research articles that generate, build and test theory. Or they might be vivid accounts, case studies, new insights or critical reflections about practice (2,000–7,000 words).
• In-depth feature articles that analyse the thinking around an aspect of engaged research. These pieces draw on the wealth of writing, experience and thought from across different disciplines and practices involved in engaged research. They capture the breadth of the landscape while providing new insights around a specific theme or topic (5,000–10,000 words).
• Commentaries offering views about thinking, practices and debates in engaged research (1,500–3,000 words).
• ‘Who inspired my thinking?’ Personal reflections drawing out key features of a book, paper or person and how they influenced the writer’s thought and practice (up to 1,500 words).
• Reviews of publications, events and resources that are relevant to engaged research (800–1,500 words).

 
To be considered for this first edition please send expressions of interest, outlines, abstracts or draft contributions to the journal’s managing editor, Pat Gordon-Smith ([email protected]) by 10th December 2015.  
 
This open-access, peer-reviewed journal is sponsored by the UCL Institute of Education and the National Coordinating Centre for Public Engagement. This joint venture models the principles of public engagement in research through its editorial advisory board and associate editors who are drawn from within and beyond higher education. It is published by IOE Press. 
 
To find out more, and view a film explaining more about the journal, please visit the NCCPE website

Call for papers for special edition of the International Educational Action Research Journal
 
The conceptualisation and articulation of impact: hopes, expectations and challenges for the participatory paradigm.
 
Editors: Tina Cook (Northumbria University and Liverpool Hope University UK) and Guest Editor Brenda Roche (Wellesley Institute, Toronto, Canada)
 
This special issue aims to explore notions of impact in relation to the principles and practices of different traditions in action research in health and wellbeing. Such approaches include Participatory Action Research, Community Based Participatory Research, Design Based Methodology and other forms of research that have participatory endeavor at their core.
 
The co-construction of knowledge through action research advances a body of community research that is aligned with the needs and interests of community members, grounded both in established methods and new and innovative approaches to data generation in social research. It is often posited that this approach promotes research that is more action-oriented, and potentially impactful.  These ideas coincide well with emerging calls by governments, funders and research councils that applied research will (or should) go beyond being predominantly a tool for knowledge collection and for it to be more directly connected to a change process; to make a difference to communities; to have an impact.  
 
Given this emerging focus on impact it would seem, as Pat Thomson says in a forthcoming editorial of EARJ, “Action researchers might be forgiven for thinking that, in this context, their moment in the sun had finally arrived” (Thomson 2015). The call for research that can also demonstrate the difference it has made to practice, is however, accompanied by the continued elevation of a dominant framework that preferences certain ways of capturing and documenting that difference. In particular, ways of conceptualising impact that favour measurement and normative practices have come to form an accepted/expected standard. There are, however, broader definitions of impact that move on from a reductionist framework towards a more comprehensive and inclusive approach for capturing both the intended (and unintended) consequences of research.  These broader definitions are more able to reflect the core values for, and nature of, participatory action research, situating the discussion within the values and principles of the approach and recognising the different forms of impact such approaches foster.  Research that has participatory practices at its centre is likely to have different types of impact from research that starts from a position of distanced objectivity but there is considerable argument over whether these are always readily recognised, articulated and accepted as ways of demonstrating change in the wider academic sphere (Cargo & Mercer; 2008; Jagosh et al: 2012). 
 
For this Special Issue of EARJ we are looking for contributions (methodological, theoretical and examples from practice) from those whose participatory approach to action research has involved them in wrestling with the challenges of evidencing impact; the challenges that arise when working within a core set of values that sit outside the predominant positivist research paradigm. As Thomson (2015) suggest, the impact agenda can provide us with an opportunity to argue for a different understanding of change/impact and to place this more securely it the wider arena.
 
We particularly value contributions from non academic partners working with academic partners in participatory research and contributions from geographical areas that are generally under-represented in this journal.
 
Deadlines:  
Abstracts of 500 words to be submitted by 31st October 2015
Invitations will be sent to selected authors by 30th November, requesting full manuscript to be submitted no later than 1st April 2016
 
References
 
Cargo M and Mercer, S (2008) The Value and Challenges of Participatory Research: Strengthening Its Practice. Annual Review of Public Health 29 (24) 1-26.
 
Jagosh J, Macaulay AC, Pluye P, Salsberg J, Bush PL, Henderson J, Sirett E, Wong G, Cargo M, Herbert CP, Seifer SD  Green LW and Greenhalgh T. (2012) Uncovering the Benefits of Participatory Research: Implications of a Realist Review for Health Research and Practice. Milbank Quarterly; 90(2): 311-346.
 
Thomson P (2015) Action research with/against impact . Educational Action Research 23(3) (forthcoming)

ICPHR members are invited to contribute a paper to a Special Issue on the topic of 
" Health Promotion and Disease Prevention among Most Vulnerable Populations" for 
AIMS Public Health (http://aimspress.com/aimsph/ch/index.aspx) which launched 
by AIMS Press. AIMS Public Health is an international Open Access journal devoted 
to publishing peer-reviewed, high quality, original papers in the field of public health.

All submitted papers will go through a peer-review process, and published papers 
are available online in open access. Moreover, all the publishing fees are fully waived for authors.

Special issue editor: Dr. Sónia F. Dias 
Special issue website: http://aimspress.com/aimsph/ch/reader/view_special_issue.aspx?key_words=Promotion&id=20141111060821001 

Submission due date: 28 February 2015.

“One of the major public health challenges has been to develop effective strategies with a great 
public health impact in combating disease and promoting health of individuals, communities and 
society as a whole. A growing number of studies show that evidence-based health promotion actions 
and policies have the potential to improve the health of populations and reduce health inequalities. 
Nevertheless, most vulnerable and disadvantaged populations remain underserved and understudied. 
AIMS Public Health will publish a special issue on health promotion and disease prevention among most 
vulnerable populations as defined by ethnicity, socio-economic status, geography, gender, age, risk status 
and identified as at-risk for health disparities. Manuscripts that present qualitative, quantitative and 
mixed methods are welcomed, as well as theoretical, implementation and evaluation studies.”

If you do not have a paper to contribute, please feel free to distribute this letter within your organization and professional network, if you think someone you know would be interested for this publishing opportunity. 
The papers will be published with the open access publication policy.

Paper Submission

Your paper must be written in strict accordance with the format.
To download the template file click Instruction for Authors on our journal webpage
http://aimspress.com/aimsph/ch/reader/view_news.aspx?id=20131011102630001

Please submit your manuscript to our online submission system at:
http://aimspress.com/aimsph/ch/author/login.aspx 

The Promise of Community-Based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence With Policy
Lisa Cacari-Stone, PhD, MA, MS, Nina Wallerstein, DrPH, Analilia P. Garcia, DrPH, MPH, and Meredith Minkler, DrPH

Abstract:
Insufficient attention has been paid to how research can be leveraged to promote health policy or how locality-based research strategies, in particular community-based participatory research (CBPR), influences health policy to eliminate racial and ethnic health inequities. To address this gap, we highlighted the efforts of 2 CBPR partnerships in California to explore how these initiatives made substantial contributions to policymaking for health equity. We presented a new conceptual model and 2 case studies to illustrate the connections among CBPR contexts and processes, policymaking processes and strategies, and outcomes. We extended the critical role of civic engagement by those communities that were most burdened by health inequities by focusing on their political participation as research brokers in bridging evidence and policymaking. (Am J Public Health. Published online ahead of print July 17, 2014: e1–e9. doi:10.2105/AJPH.2014.301961)

Citation: Cacari-Stone, L., Wallerstein, N., Garcia, A. P., & Minkler, M. (2014). The Promise of Community-Based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence With Policy. American journal of public health, (0), e1-e9.
Copyright holder: American Public Health Association (APHA)
Read More: http://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2014.301961