Ethics in Participatory Health Research
The Ethics Working Group meets every two months online. If you would like to join our meetings or be added to our mailing list, please contact the convenor, Sarah Banks: s.j.banks@durham.ac.uk
We share experiences of ethical issues and challenges in participatory research, discuss case examples and consider theoretical and conceptual approaches. Recent work of the group has involved revising the ICPHR Position Paper on Ethics (2022), preparing toolkits and case studies to accompany the paper, writing an article based on cases and commentaries and designing and running a training workshop on ethics. Key topics we have discussed or are interested in include: ethics issues in researching with people who have experienced trauma or who are marginalised and stigmatised; ethical challenges in working to influence policy; and roles and responsibilities linked to research relationships, including matters of trust and care.
We share experiences of ethical issues and challenges in participatory research, discuss case examples and consider theoretical and conceptual approaches. Recent work of the group has involved revising the ICPHR Position Paper on Ethics (2022), preparing toolkits and case studies to accompany the paper, writing an article based on cases and commentaries and designing and running a training workshop on ethics. Key topics we have discussed or are interested in include: ethics issues in researching with people who have experienced trauma or who are marginalised and stigmatised; ethical challenges in working to influence policy; and roles and responsibilities linked to research relationships, including matters of trust and care.