International Collaboration  For Participatory Research
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About the Position Papers & Discussion Papers

7/7/2022

1 Comment

 
The position papers of the ICPHR are an important forum for defining and debating the practice and principles of participatory research in health.  Multi-national editorial groups write the papers which are then circulated to the entire membership for comment.  The input received is incorporated into the published version.  At the Annual Working Meetings ideas for new papers are generated and the papers-in-progress are discussed.  

​The position papers are living documents, based on the experience of the members of the ICPHR and their ongoing work to synthesize what has been learned in the context of studies conducted in various countries.  
​They will be revised over time, reflecting the collective knowledge of the ICPHR membership.
​
In addition to position papers, we are introducing a discussion paper format so as to provide a forum for members to present their views on controversial topics and on topics that speak to very specific issues.  Members who are interested in taking a lead on a position paper or a discussion paper should contact the Central Office.  These four position papers are found below.
1 Comment

Position Paper #2, 2E: Participatory Health Research - A Guide to Ethical Principles and Practice

7/6/2022

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Participatory Health Research - A Guide to Ethical Principles and Practice

Appendices


Topic: To enhance awareness of ethical challenges on the part of research partners and their ability to tackle such challenges. This position paper comprises two documents: the position paper and a set of appendices (cases and toolkits).

Editorial Group: 
  • Prof. Sarah Banks (coordinator)
  • Dr. Susanne Börner
  • Dr. Michelle Brear
  • Dr. Barbara Groot
  • Mr. Pradeep Narayanan
  • Dr. Petra Plunger
  • Ms. Pinky Shabangu
  • Ms. Naseem Sadat Tayebi
  • Ms. Marilena von Köppen
​
Status: The member review process has ended. Please provide feedback using the 'add comment' link below.
Position Paper #2, 2E: Appendices
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Position Paper #6: Participatory Health Research with Migrants: Opportunities, Challenges and Way Forwards

5/27/2022

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Participatory Health Research with Migrants: Opportunities, Challenges and Way Forwards

Topic: Migration is one of the most politically pressing issues of the 21st century but migrant health remains an under-researched area. The International Collaboration for Participatory Health Research (ICPHR) working group on migration developed this position statement to address opportunities and challenges in relation to migrant health.

Editorial Group: 
  • Dr. Maria Roura
  • Prof. Anne MacFarlane
  • Dr. Sónia Dias
  • Dr. Joseph W. LeMaster
​
Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.
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Position Paper #5: Empowerment and Participatory Health Research

5/26/2022

1 Comment

 
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Empowerment and Participatory Health Research
Topic: The text, synthesizes multiple points of view about the concept of empowerment and its relationship to participatory health research.

Editorial Group: 
  • Dr. Maria Elisabeth Kleba
  • Prof. Nina Wallerstein
  • Cyrilla van der Donk, MA
  • Prof. Michael Wright
  • Dr. Ana Paula Belon
  • Dr. Denise Gastaldo
  • Dr. Helen Avery
  • Dr. Harry Shier

Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.
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Position Paper #4: Funding Participatory Health Research

10/28/2021

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Funding Participatory Health Research
Topic: How To … Support Meaningful Participatory Health Research as a Funding Organization … and Why!

Editorial Leads: Matthias von Witsch, DLR Project Management Agency, Division of Health Research
Bonn, Germany
Sónia Dias, Universidade Nova de Lisboa, Lisbon, Portugal

Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.
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Position Paper #3: Impact in Participatory Health Research

3/30/2020

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ICPHR Position Paper #3: Impact in Participatory Health Research
File Size: 574 kb
File Type: pdf
Download File

Impact in Participatory Health Research
Topic: Experts in PHR from eleven countries met to launch an international discussion on what impact means in the participatory research process, how to maximize the impact of the research, and how to observe and document what impact has occurred.​

Editorial Lead: Tina Cook, Liverpool Hope University, Liverpool, UK

Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.

A short summary of Position Paper #3 can be downloaded here. 
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Position Paper #1 (Portuguese version)

1/29/2018

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O QUE É A PESQUISA-AÇÃO PARTICIPATIVA EM SAÚDE (ICPHR POSITION PAPER 1)
​

Topic: Describing the defining characteristics of PHR, including its unique contributions to health research.   

Editorial Lead: Michael Wright, Institute for Social Health, Catholic University of Applied Social Sciences Berlin, Germany and Irma Brito, PhD. Escola Superior de Enfermagem de Coimbra, Coimbra, Portugal

Tradução para português:
Maria da Alegria Simões, Escola Superior de Enfermagem de Coimbra, Portugal
Maria Elisabete Martins, Escola Superior de Enfermagem de Coimbra, Portugal
Maria do Céu Barbieri, Escola Superior de Enfermagem do Porto, Portugal
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Position Paper No. 2

10/1/2013

1 Comment

 
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Participatory Health Research
A Guide to Ethical Principles and Practice

Topic: To enhance awareness of ethical challenges on the part of research partners and their ability to tackle such challenges.

Editorial Lead: Sarah Banks, Durham University, Durham, UK. Contact: s.j.banks@durham.ac.uk

Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.

1 Comment

Position Paper No. 1

5/1/2013

4 Comments

 
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What is Participatory Health Research?
Topic: Describing the defining characteristics of PHR, including its unique contributions to health research.   

Editorial Lead: Michael Wright, Institute for Social Health, Catholic University of Applied Social Sciences Berlin, Germany (michael.wright@khsb-berlin.de).  

Status:  The member review process has ended. Please provide feedback using the 'add comment' link below.

4 Comments

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