Request for case examples (by 31 July 2021)
Susanne Börner, University of Birmingham, UK, firstname.lastname@example.org
Petra Plunger, St. Pölten University of Applied Sciences, Austria, email@example.com
Sarah Banks, Durham University, UK, firstname.lastname@example.org
We are inviting people to write short case examples about ethical issues in conducting participatory research during Covid-19 restrictions. By ‘participatory research’ we mean research where people who might usually be regarded as subjects of research play a more active role in at least some aspects of the process (e.g. design, data collection, analysis, dissemination, implementation). We are seeking to include examples from different countries around the world, as well as from working across different groups in terms of age, gender, ethnicity, etc., relating to health and social well-being in the wider sense. The case studies can include (but are not limited to) issues such as: access to communities during Covid-19, trust-building online, issues of privacy and confidentiality in online communications, tackling digital exclusion, deciding whether to conduct research in-person, the impact of wearing masks and physical distancing, assessing new health risks, power dynamics, roles and responsibilities, etc.
The case studies will be placed on the International Collaboration on Participatory Health Research (ICPHR) website. These can be used in training, teaching and in preparing groups to undertake participatory research projects. We may also use them in articles or other publications, with the consent of the case writers. The cases will complement the ICPHR ethical guidelines.